On January 27, 2026, the LGMD2L Foundation announced a collaborative research initiative with the Muscular Dystrophy Association (MDA), the FSHD Society, and Parent Project Muscular Dystrophy (PPMD) to create the most detailed molecular map yet of how healthy human skeletal muscle regenerates, and how that process is altered in the neuromuscular diseases Duchenne, FSHD, and LGMD2L.

Under this partnership, a grant of $213,446 was awarded to Dr. Abigail Mackey at Copenhagen University Hospital to lead the project, which will analyze muscle repair at single-nucleus resolution and compare healthy and disease-affected tissue. The resulting data are expected to serve as a foundational resource for future regenerative therapies across LGMD2L and other muscle disorders.

The effort stems from priorities identified at MDA’s 2024 Muscle Regeneration Summit and reflects a shared goal among the organizations to accelerate treatments that enhance muscle repair. Read the full press release here.