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The LGMD2L Foundation was established in 2018 to unite people afflicted by this rare disease, raise awareness, and provide a forum to connect, discuss, and build community. In 2024 we expanded our scope to begin actively funding research towards treatments. Our mission is to work together as a community to improve the lives of those affected by LGMD2L, accelerate the development of effective treatments, and ultimately find a cure.

LGMD2L Foundation

LGMD2L Foundation

About Us

Ralph Yaniz

Founder and President

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Hal Tily, PhD

VP Research

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Denny Sly

Board Member and Treasurer

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Annaliese Sullivan

Board Member

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Foundation Team

Foundation Team

Your support can make a difference today.

Help us accelerate research and bring hope to those living with LGMD2L.

Phone: (224) 392-5420

© 2025 LGMD2L Foundation. All rights reserved.

Professor Hyojung Choo, PhD

Emory University

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Professor Criss Hartzell, PhD

Emory University

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Professor Monkol Lek, PhD

Yale University

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Ryan Mitchell, PhD

SVP Medical & Scientific Affairs, Satellos

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Professor Perry Shieh, MD, PhD

UCLA

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Professor Conrad Weihl, MD, PhD

Washington University, St. Louis

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Advisory Committee

Advisory Committee

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